Sorry we haven't posted in a few days. So I will attempt to catch you up.
Day 51 - Thursday
Wyatt had a pretty good day he still has some pain associated with his Trach. When he is moved and is agitated he gets very upset and his pulse ox drops. Because of this he had to be bagged 4 times.
Day 52 - Friday
This was Wyatt's worst day so far. Kelly and I got to the hospital around 7:45am. He was going to have his Trach changed out. The ORL resident showed up around 9:30 and said they were going to just change his trach ties and take out two sutures, which they did. This upset Wyatt and he had to be bagged. He settled down for a couple of hours until 11:30ish. At 11:30 they were doing a position change on him and he did not approve of that. This began a long line of issues. They gave him a bolas of fentanyl to help calm him down. He was bagged to get his O2's back up then placed back on the vent. Once back on the vent his O2's immediately dropped back down and was bagged again, this time he didn't respond well to the bagging. I left go get some help and the 1st person I saw was Dr. Ivanov, his doc, He came in and took charge, the central nurse station watches the telemetry, and we soon had two Nurse Practitioners, a Respiratory Therapist and a few others all on task. For the next hour and a half they worked in finding the right settings on the vent and finally took him off of NAVA vent settings and put him back on conventional vent settings. In order to get his O2's to stay up they had to give him large volume support which caused vary high pressures in his lungs. this was necessary because his lungs became very stiff. This was a major concern because the high volume/pressure could cause permanent lung damage. The rest of the afternoon and early evening was very difficult for Wyatt and us. He was bagged more times than we can remember. To help him relax they upped his Versed from .03 to .05. All this time he also required 70%O2 on the vent to maintain his saturation. Later that night we had a very frank discussion with the Doctor on the night shift concerning what could be causing Wyatt's trouble and the possibility that all of the days activities may be his lungs giving up. Kelly and I left around 12:30am once he had settled in and was resting.
Day 53 - Saturday
We call Wyatt's nurse around 5:30am and got a good report that he was sleeping and resting well. We hadscheduled for my parents to come in for the Saturday morning shift so that we could get some extra sleep. When my parents got here at 9:30am and come to find out Kelly's Dad (Jim) got here a little before 5:30am (he was there when we called) to stay with Wyatt. Kelly and I arrived around 1pm and Wyatt was doing great. We spoke with the doctor and it was his opinion that all of the opioid pain medicines had caused his issues on Friday. He had Fentanyl on Sunday for his transport, had surgery Monday morning with Sedation and other pain medication, and post surgery he has had a Fentanyl and Versed drip and was getting a bolas (extra boost) from time to time. Saturday morning Wyatt began creating enough negative pressure with his lungs that he was triggering the vent to give him breaths. He is back to normal volume and a pressure support of 18 which is good, O2 support is down to 47%. Kelly and I stayed with him till around 9pm and went home to rest.
Day 54 - Sunday
Wyatt is doing great and has only been bagged once so far today, around 7am, he just gets so mad when he is moved, most likely because of some pain from the trach site. In conclusion, Thursday no a bad dad, Friday worst day for him by far, Saturday good day and Sunday good so far. He and the vent are friends again. Nurses who haven't had him as a patient come by to see him, and the nurses that have been assigned to him are now requesting to be to his permanent care giver. He continues to have an effect on everyone who meets him. Sorry for the long post.
We are thankful for every day we have and appreciate all of the Prayers he gets.
Continue to Pray for Wyatt and all sick babies.
-Dad